Family Stories

3 posts tagged with "Craniofacial-Conditions"

(Spina Bifida, Cleft Lip and Palate)

(Spina Bifida, Cleft Lip and Palate)
My husband and I decided very soon after we were married that adoption would be part of our family plan. We felt it was the perfect opportunity to join a couple or family longing for a child with a little one who needed a family... Opening our hearts and minds to special needs adoption was an evolutionary process. It didn't happen over night. As we began seriously researching adoption programs, we became aware of the many children waiting for families. So many kids were STILL waiting... Read More

Hayden's Story (Linear Nevus Sebaceous Syndrome, Facial Difference)

Hayden's Story (Linear Nevus Sebaceous Syndrome, Facial Difference)
Hayden was our tenth child and our third adopted child. She has facial deformities that were undiagnosed at the time of her adoption; the diagnosis in her file was Neurofibromatosis, although there was some question about that. She had what looked like tumors on her face, as well as some nevi. I have always been interested in adoption and probably having watched the movie about the DeBolts played into that. Our sixth child was our first adoption, and we knew we wanted a large family... Read More

(Cleft Lip and Palate)

(Cleft Lip and Palate)
I have adopted two children with cleft lip and palate. My son who is now 5 has unilateral cleft lip and palate. My daughter who is two has bilateral cleft lip and palate. I was drawn to adoption after becoming very exhausted with infertility. I wanted a larger family. I will be very honest. I wanted children no matter what. The first time around I was very picky with the special needs I selected. I thought cleft lip and palate seemed easy enough one surgery and done. Read More