Albinism

Skin Conditions

Albinism Special Needs Video

Albinism Special Needs Video

FACTS:

  • Albinism occurs when one of several genetic defects makes the body unable to produce or distribute melanin, a natural substance that gives color to your hair, skin, and iris of the eye.

  • There are 17 different types of albinism.

  • Children with albinism have normal intelligence.

  • Children with albinism can expect to live long and healthy lives.

  • A child with albinism will have one of the following symptoms:
    1. Absence of coloring from the hair, skin, or iris of the eye
    2. Lighter than normal skin and hair
    3. Patchy, missing skin color

  • Many forms of albinism are associated with the following symptoms:
    1. Light sensitivity -photophobia
    2. Rapid eye movements -nystagmus
    3. Vision problems, even occasionally functional blindness
    4. crossed eyes- strabismus

TREATMENT:

  • Albinism cannont be cured with medicine or surgery.
  • Frequent eye exams are necessary as the child may have decreased vision. Providing large, clear pictures/letters to children with albinism can help develop both vision and language skills.
  • Wearing hats and sunglasses, even when indoors, can help make a child more comfortable and less sensitive to light.
  • Wearing sunscreen is important anytime a child goes outside in order to prevent sunburn.
  • Providing large, clear pictures/letters to children with albinism can help develop both vision and language skills.  High contrast toys are best.  

 

REAL LIFE SUCCESS STORIES:

The Kramer Kids

The Kramer kids

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