adoptspecialneeds.org

More helpful information on this condition can be found at http://www.nevusnetwork.org/ 

Alai's story....

"I wanted to share my experience because I know that when a family considers adopting a child with Giant Congenital Nevus, it can be scary. "

"What my doctor told me was that most of the studies have been done in western countries, with caucasian participants and a caucasian skin type and colour, with obvious consecuences in relation with melanomas. There are very few studies done in other countries (I found one 3 years ago about giant nevus on southeast-asian participants."

"What you usually read is that the probability of developing melanoma is of about 5%, but I prefer to read statistics the other way round, that number means that 95% does not. With a giant nevus you should take precautions with the sun, but they are same precautions all of us should take, especially if you have moles. "

"The treatment might be long and hard but it is worth it. I was assured that my daughter didn't feel pain, and I could see that she really didn't, and that was one of the most important things that made us go on with the surgery. The other was the thought that if something happened to her when she grew up, because she didn't have the surgery, I could never forgive myself. "